“How much of human life is lost in waiting.” Ralph Waldo Emerson.
I warn you now this is long. Very long. If you want the shortened version here it is: I went to hospital and had to stay in for 4 days because I was jaundiced. I will have an operation in a few weeks to remove my gall bladder.
And now for all the details:
Shortly after breakfast on Monday morning I started getting a pain below my ribs. I had had this problem a few times over the last three weeks. My doctor had diagnosed a chest infection and prescribed antibiotics. He was right that I had an infection but that was not what was causing the terrible pain. It was a tightening in the centre which meant every breath came with a sharp stab. Previously it had been enough to slow me down but not to stop me completely. It had been enough to keep me awake for a couple of hours at a time but I had not had any pain since the antibiotics so I presumed the doctor had been right and it was simply an odd side effect of the chest infection. This time however it was bad enough that I could no longer stand up, nor talk for lack of breath. Matthew phoned NHS Direct for advice, they asked lots of questions during which I was starting to feel very faint and was getting pins and needles in my hands. The first aider in me got me to lie down on the sofa with my feet up on the arm rest. NHS Direct put Matthew through to the emergency services. The paramedic was here before Matthew had a chance to get to the front door with Samuel to help them find the house. This was a car that was very quickly followed by an ambulance and two more paramedics. The pain was starting to ease but they did lots of breathing related tests including a full ECG which involves lots of wires being stuck to your chest and legs to get a full reading of your heart which draws a line across their screen. Apparently mine couldn't have been better if they had drawn it themselves. This was encouraging but didn't answer the question as to what was wrong with me. My blood pressure was very low despite being led down which normally makes it go up. After some discussion they advised a trip to hospital as they didn't want a repeat occurrence on their conscience especially as I was looking after Samuel. Matthew let his work know what was happening and after a shaky walk to the ambulance off we set with Matthew following in the car with Samuel and a rather hastily packed changing bag. I also had the good sense to grab my book as I left.
This is where the waiting started.
We live in the country; in the middle of Somerset. Our nearest hospital, Yeovil, is 40 minutes drive away. I was no longer having trouble breathing so we didn't need to rush there. When we did get there the paramedic remarked how busy A&E seemed. This is never a good start to a hospital visit. Hospitals are never unbusy but for someone who sees them every day to be surprised by the volume of people it has to mean something and that something means lots of waiting. After 10 minutes they managed to find out from reception which bay to put me in. Then they had to wait another 10 minutes to flag down the right nurse for that bay so they could hand me over to them. The nurses repeated all the tests the paramedics had done, they were still all fine and my blood pressure was now completely normal.
Then I had to wait for a doctor to see me. In the meantime Matthew and Samuel had arrived, said a quick hello then gone to play in the children's area of the waiting room as Samuel seemed insistent that he needed to pull off all the wires and things monitoring me. He also wanted to open all the bins which is never a good thing to do in a hospital.
I waited.
The doctor came but she was also a bit confused by my symptoms and so said I would need a chest x-ray and some blood tests. The nurses were so busy that she decided it would be quicker to do the bloods herself. People never like taking blood from me as my veins never show up in the right place. Every time I give blood the nurses worry whether they will find a good enough vein to get enough out. In the end though it's always fine. They stick a needle into my inner elbow near all the little marks from previous times and out the blood flows. I told the doctor this but she wasn't convinced so after prodding both my arms she decided to try the back of my hand. The first attempt yielded nothing. The second got some but seeing as it wasn't enough for even one quarter of one of the four tubes she needed she gave up and went off to get another needle.
I waited.
She came back and said she was going to try my method. It worked. Too well. Blood went everywhere before she could get the tubes full. I then started feeling sick. I then was sick. No idea why as I have never had a problem with blood before but maybe it was just one thing too many. She gave me a bowl and said she'd get a nurse to give me something to stop the nausea.
I waited.
After 15 minutes of holding the bowl of sick I pressed my buzzer.
I waited.
A nurse came in asked if I was all right. I asked for a tissue and some water to wash my mouth out. She took the bowl and handed me a paper towel. She said she would have to check with the doctor as to whether I was allowed to drink or not.
I waited.
An hour after being sick a nurse came in to give me a drip of anti-sickness stuff. I no longer felt ill and in fact hadn't felt ill since I was sick. It had taken that long. I told you they were busy.
I waited.
The doctor came back to tell me she was sending me for a chest x-ray. I asked for a drink she said I could only have a mouthful to swill out the taste. By now it was lunch time so I got Matthew to come and say goodbye and sent him off to have lunch and go home to meet my Dad who was due that afternoon for a visit. I said I would send for one of them when I needed collecting.
I waited.
I buzzed for a nurse as I needed the loo. One came, she switched off my drip and said to buzz when I came back for someone to switch it back on for me. As soon as I came back two nurses came to take me to x-ray. On the way there my drip came out. The nurses asked if I was still feeling sick and I told them I had stopped feeling sick an hour before they gave it to me. One laughed and said 'yes it has been rather busy in here this morning.' I had my x-ray which apparently looked fine and I was taken back to my bay. I was glad that my drip had come out as it had been thoroughly annoying me as had the other things attached to me and the angle of my bed. Basically I was uncomfortable and still in pain and I just wanted to go home. I had, at this point, convinced myself that there was in fact nothing wrong with me and that we were all wasting each other's time. I had been reading my book on and off but couldn't really concentrate on it.
I waited.
The doctor returned to say that because everything was fine this was a gastro- something or other. Basically it wasn't a chest problem but a stomach one and that a surgeon from 'upstairs' would come and see me.
I waited.
A couple of nurses turned up and said that I was being moved to an observation ward as they needed these bays. So I got moved. I now had a different bed which was laid flat so much more comfortable and I was able to rest a bit. This side ward was a lot calmer and emptier. It seemed everyone else here was waiting too.
I waited.
The surgeon from 'upstairs' came to see me. He was very friendly and had expert listening skills. He said that it sounded rather like gall stones and that he would send me for an ultra-scan. He wasn't sure whether this would be done this afternoon or tomorrow morning. If it had to wait then I would have to stay in. The nurse said she would let me know as soon as she did as to which day it would be so that I could sort out childcare for Tuesday if necessary. I was given some paracetamol to help to ease the remaining tenderness. The amount of water I swallowed these with was strictly monitored. I was so hungry and thirsty by now I was tempted to down the lot before she could stop me.
I waited.
I was asked to do a urine sample, which I did.
I waited.
At 4.30pm the nurse recommended that I sort out childcare as they stopped doing scans at 5pm and she would have heard by now if I was going to be done today. So I let Matthew know. Then 5 minutes later I was collected by a porter and taken up for a scan. The scan revealed that yes there were several small stones in my gall bladder. The sonographer said that they would probably remove my gall bladder. The nurse from my ward met me outside the scan as she was taking me to another ward as it was no longer necessary for me to be in A&E. I was handed over to the nurses there and told that the surgeon would be coming to see me to talk about the scan and then I would probably be able to go home.
I waited.
I asked a nurse if the doctor was still coming. She told me they were very busy downstairs but that she would call to remind them. Now if you have been following closely you will realise that this doesn't make any sense. When I was downstairs I waited for the doctor from upstairs. Now I was upstairs I was apparently waiting for the same doctor to come from downstairs which was A&E and so was very busy. With this in mind I asked Matthew to get my Dad to bring an overnight bag for me as he was coming to Yeovil that night anyway for work the next day. Also I told him who to contact to see if they could look after Samuel on Tuesday. I had been hopeful but not unrealistic with my expectations of getting home that night and so was prepared with a list of things to go in my bag which I relayed to Matthew.
I waited.
Dad arrived with my bag which I was very grateful for as it meant I wouldn't have to spend the night in the hospital gown and my jeans which is what I had been wearing all day. I also had another book and my Nintendo DS to while away all the hours of waiting I was anticipating.
I waited.
It had got to about 9pm. I went and asked the nurse in all honesty if there was still any chance the doctor was going to come and see me tonight and even if he did would they actually operate tonight and if not please could I have something to eat? She relented and agreed that no, no-one would come to see me tonight and that yes she would get me a snack box. She also informed me that as soon as a porter was free I was being moved wards again. No idea why.
I waited.
A porter and my snack box came at the same time and I was taken upstairs again to another ward. This ward, I was told, was an operations ward and so was a clean ward. Now to me the ward I had come from looked pretty clean but apparently this was different. It meant that because my swabs for the MRSA virus hadn't come back yet I had to be kept in isolation in a side room. This suited me fine at the time as it meant that I didn't have much to disturb me from sleeping and eating and generally doing as I pleased. I phoned Matthew for a quick update. Wendi from church had generously offered to have Samuel all day tomorrow so that was one less thing to worry about. Then I settled down to a much overdue meal and drink. I was delighted to see that the sandwich was a plain cheese one as I was worried I would have to pick out the filling. After eating one and a half sandwiches I felt a bit odd. I put it down to the fact that I had been ill and then not eaten all day and my stomach was complaining at the sudden onslaught of food so late at night. So I left my food there knowing I could always eat my crisps and biscuits during the night if I wanted. I also had my tiny, tiny carton of apple juice which instead of having a straw I had been given a spoon to drink it with. Who knows what logic had gone into that one. I then went to bed.
As soon as I laid down, however, the pain got worse again. This wasn't the 'I can't breath pain' but simply the 'I can't sleep pain.' After tossing and turning and trying several different angles of the bed (one of those cool electronically controlled ones) and pacing round the room a bit I gave in and pressed my call button. I always felt guilty pressing this button especially in this room. Due to the isolation sign on my door every time someone wanted to come in they had to wash their hands (with that antibacterial gel you get all over hospitals) put on an apron and a pair of gloves. Before leaving my room (no matter how short a time they had been in there) they had to remove their gloves and apron put them in my bin, wash their hands with water and soap, leave and then gel them again once they had gone out. So every time I called a nurse in I felt that I was not only adding to my carbon footprint but also getting the NHS more and more into debt. Anyway a nurse came in and I asked for some pain relief. She told me the other nurse was on her way doing the drugs round and would be with me in a minute.
I waited.
Half an hour later she came and offered me some paracetamol. I took it and tried to go sleep. After 2 hours of pain where I would sleep for about 15 minutes and then wake again. I decided enough was enough and buzzed again. Another tree wasted and another debt for our health service was needed for the nurse to tell me that they were still waiting for a doctor to come and see me and until they did she could not give me anything more as it had not yet been prescribed. She left. I cried. I read for a bit. I was sick although I didn't buzz the nurse as I felt fine again and so didn't feel it was worth killing more trees and creating more debt. I read for a bit more and then at about 4pm I finally managed to get to sleep.
At 6.30am I was woken up by the nurse to have my blood pressure checked. I was also given more paracetamol with limited water as I was once again being starved until the doctor saw me. I was told they did their rounds at 8am.
I waited.
At 9.30 the doctor came, a different one from the previous afternoon. Along with 4 other men. He introduced neither himself nor his entourage. He asked how I was feeling and said they were waiting for the scan results to see if there were any stones. I was not happy. I already knew there were stones so why didn't he? I asked how long it would be and he seemed very insulted at my impatience. Apparently he was not aware that I had been waiting 17 hours in pain for him to see me to only be told less than I had already been told. Emotions and hormones (they always chose the worst possible time don't they ladies?) hit hard and I started to cry. He asked why I was upset and I tried to explain that I had been waiting so long and I wanted to know when I could go home. He didn't understand and simply said there was nothing to cry about; if there were stones they would remove my gall bladder. With no further explanation, empathy, sympathy or communication he took off his gloves and apron, washed his hands and left. As did his team. I was left confused, annoyed and crying on my bed. Thankfully one of the nurses came in soon after they left to offer the bedside manner that had been forgotten by the doctor. She got me tissues and explained a bit more and reassured me that the scan would be back very shortly.
I waited.
About 11.30 the first doctor I had met in A&E the previous day came to see me. This visit completely undermined all the hard work the nurses and other doctors had been doing to keep me isolated as she just walked in without the planet killing, NHS bankrupting, ritual cleaning and donning of apron and gloves. Maybe she doesn't have to obey all the rules like everyone else... Anyway she said that, yes, there were gall stones and that I would have to have my gall bladder removed. So now I was back to the same stage as 5pm yesterday just with stronger pain killers. In the meantime she wanted to get some more bloods done and if they were fine then I would be able to go home that afternoon. Thankfully the bloods weren't going to be taken by her this time but by a nurse who would come shortly. She also said I could eat and drink again but I had to have a no-fat diet. This is because when you eat fat your gall bladder (if you still have one) contracts to pass bile into the stomach to aid the digestion of the fatty foods. This contracting was what had been causing me pain. If there is no fat to digest then the gall bladder won't contract and there will be no pain. She left and I asked the nurse for some food, she assured me that lunch would be here in 30 minutes but if I didn't want to wait until then she could find me some cereal. By this time I was fully wise to the hospital's idea of time and asked for something now. She brought me a bowl of cornflakes with semi-skimmed milk which is low enough in fat that I could have.
I waited.
A nurse came and took some blood.
I waited.
At 12.45 some lunch arrived. For those of who have been fortunate enough not to experience the hospital style of menu ordering it goes something like this. Each afternoon you get given a menu for the following day's lunch and dinner and the day after that's breakfast. This has your name and bed on it. So if, like me, you had not been in that particular bed long enough to have ordered your food you have to wait until everyone else on the ward has been served then a nurse will come to you with what they still have to offer and try their best to get your choice of meal. If you happen to want exactly what the previous occupant had ordered then that's even better. The menu was listed with a key so that you could tell what was vegetarian, gluten free, low in sugar, low in fat etc. So my choices were always rather limited. On top of that I'm already a fussy eater. Also I had just had cereal and my stomach wasn't up to much more after the sickness from the day before. I ordered a low fat meal and ate what I could.
I waited.
At some point mid afternoon one of the entourage of the doctor who had no bedside manner came back. Thankfully this man, who still didn't introduce himself, was much friendlier and it was with much regret that he told me my blood results were not good. I had a stone that had been pushed out of my gall bladder and had become stuck further down. This was causing a blockage meaning that everything my liver was trying to get rid of was just becoming a backlog. This had made me jaundice. He said they would have to keep me in until at least Thursday and repeat the blood test a couple of times. This would mean they could keep a close eye on me and if I didn't improve then they would put a camera down, find the stone and snip it out. If by Thursday my blood was back to normal then I would be able to go home and come back for the operation as planned.
I cried some more at the thought of staying in for another 2 days at least. I was really missing my baby and my husband and my freedom. The nurse returned to make sure I was okay and said that my MRSA results were back and I wasn't contagious so I was allowed out to have a shower. This was gratefully received! I also filled in my menu for the following day. Thankfully my Mum was able to get short notice holiday for the Wednesday and Thursday which was a great relief for me as it meant I no longer had to worry about sorting out childcare. We had had many generous offers of help but knowing that there would be someone at home all the time to look after both Samuel and Matthew was a weight off my mind as Matthew has only just got over his own set of operations so to look after Samuel and go to work and still be able to feed himself and visit me was all going to be a lot of work for him. I updated all the people who had been asking for news. It was a good job I had free texts and internet at the time as I got through about 200 texts during my stay.
I waited.
Then dinner was brought round. Again I had to wait until last and then take my pick from the low fat options. Sadly not long after eating it I was sick again. Lunch had been fine but apparently this meal just wasn't what my stomach wanted. After dinner Matthew came with Samuel. Visitors to the ward were allowed to enter without any MRSA tests so I have no idea how that fits in with the policies. Even if they hadn't been allowed on the ward I was prepared to go to another part of the hospital to be able to see them. We caught up with each other's day whilst Samuel played with the bed and the wheelable table. Matthew looked shattered so I sent them both home to bed with the promise that my Mum would be there before Matthew had to go to work the next morning and would look after everything. Mums are great at doing that sort of thing.
After Matthew and Samuel left I was feeling shattered so at 9pm I went to sleep. It was wonderful sleep, even the plastic hospital bedding seemed comfortable. It was bliss. Until the nurse apologetically woke me up at 10pm to give me more pills and check my blood pressure again. Then more blissful sleep. Until she had to wake me up again at 11pm to move me onto the open ward as someone else was being sent up to them who needed to be isolated. I asked if I had to get up and move all my stuff but she assured me that she would simply move my bed and locker complete with me and all my belongings. After being on the open ward for half an hour I asked her if the lights were going to be switched off at all or whether I should just try to go back to sleep anyway. She said they would go out when everything had calmed down again. At midnight it all went black. Well in the ward it did but in the corridor all the lights were still on. I didn't care I just went to sleep anyway. I was only woken up twice more in the night when the nurse had to check a couple of patients blood pressure and bring a bed pan to my neighbour. At 6.30 I was woken again for another blood pressure check.
The morning passed fairly uneventfully. I showered and had breakfast. I spoke to my Mum and gave her another list of things to bring for me when she came to visit that afternoon. The doctor who lacks bedside manner returned to explain everything to me and seemed a bit put out when I told him that Entourage Doctor had already explained it and seeing as nothing else had happened since then he left again saying that hopefully I would be out tomorrow as they would be needing the bed. Like I would be staying here for no reason! I had another blood test done. I received lots of envious glares every time I went to the toilet as I was, for some unknown reason, on a ward with people who had had hip and knee operations. I was the only person who could go to the toilet without the help of a nurse and a bed pan. Eventually they learnt that I was too nice and useful to be evil to. My presence meant that they no longer had to buzz and wait for a nurse when something was out of their reach as I could grab it for them. I suddenly became their new best friend. Mum was due after lunch.
I waited.
Mum came with Samuel. We chatted whilst Samuel pushed zimmer frames and unused drip stands round the ward and waved at all the other ladies and nurses. Whilst they were there the Entourage Doctor came back to tell me that my bloods were improving well and that they would re-do them tomorrow but it looked like I would be able to go home tomorrow afternoon. This was very encouraging and made all the water I had been drinking to help flush the stone out worth it. The rest of the afternoon went whilst I did lots of reading and sewing and texting. Dinner was somewhat of a disappointment. I had ordered ham salad with sweetcorn. I don't like salad, sadly, but it was the only thing even close to something I would and was allowed to eat. I figured a bit of ham and some sweetcorn followed my fruit for pudding wasn't too far off a meal. The sweetcorn was burnt. Now I know it's stereotypical to complain about NHS food and up until now it had all been quite edible even considering my fussiness, but burnt sweetcorn? I didn't even know it was possible to burn sweetcorn. I put a load of salt on it, something I never do unless it's chips and ate as much as I could. Needless to say it was not the best meal I have ever had. Matthew came to visit in the evening whilst Mum put Samuel to bed. It's amazing how much you can miss a person in two days and how much you can crave the company of those you love.
The evening passed with more reading and chatting to the other ladies. I had a nap for an hour or so until the drugs and blood pressure round and sat reading whilst the nurses sorted everyone out and things quietened down again. Thankfully I was not moved again during the night although I was woken by the wind whistling through the windows and other patients' needs but not nearly as much as previously.
Thursday morning started in much the same way as Wednesday. Although I did make the big mistake of checking my watch at 6am when the nurse was doing someone else's blood pressure. I was quite happy to go back to sleep but when she saw me move she said 'oh good you're awake I'll check yours now as well then.' I get more of a lie-in at home with a 15 month toddler than in hospital. Another visit from the moody doctor who seemed a little more polite today to confirm what his entourage had told me yesterday and to say that they would do another blood test. He was yet to tell me anything that another doctor hadn't previously told me but I guess better twice than not at all.
Part way through the morning a couple of student doctors came to see me. They wanted someone to practise their diagnosis and check ups on. I think I disappointed them as by this time I was no longer yellow and everything felt normal to them. It was a good way to kill some time, however, so I happily let them do all the tests and prodding and poking they wanted and they seemed grateful despite the lack of any actual problems. Their visit did mean, however, I had missed the nurse who comes collecting blood. A nurse on my ward said they would come back later on that afternoon. Alarm bells starting ringing in my head. Bloods take 3 hours to come back then you have to wait for a doctor to come and talk to you about them. Even if they were fine it would take another 2-3 hours for the hospital to discharge you once everyone had signed the right paperwork and prescriptions had been sent from the pharmacy. My Mum had to leave at 7pm if I wasn't back home by then Matthew would have to come and collect me in the evening after getting someone else to babysit. This presuming we could find enough doctors to sign everything and experience had already taught me that unless you were an emergency no doctor would see you after dinner they simply didn't have the time. I was damned if I was going to stay another night and have to sort out childcare for another day just because I had helped out some students. I politely told the nurse this including in there a reminder that they were desperate for my bed as they had several people booked in for hip operations the next day and had no where to put them. She said one of the ward nurses would take my blood as soon as she was back from her break.
I waited.
She returned from her break.
I waited.
I went and nagged them apologetically again reminding them they wanted my bed. At 11.30 she came and took my blood and rushed it off to the right place. At 2.30pm the now slightly politer doctor and a different entourage doctor came to tell me my blood results were back to normal and I could go home just as soon as everything was signed. I was told this could be up to three hours. The other entourage doctor promised he would do it as quickly as he could and just a few minutes later returned to say he had done his bit and it was now in the hands of the pharmacy. At 4pm Mum came again with Samuel. I had packed and was waiting to go. At 4.30pm I went and asked the nurses if they could tell me how much longer it would be as the visiting hours were over and I was aware I had a toddler running round their ward in case they wanted us to go and wait somewhere else. They kindly phoned the pharmacy and got them to make mine the top of their list and told me that one of them would personally go and collect it so that I could go home. In the meantime Mum and Samuel were fine to hang around and wait. At 4.50pm the nurse rushed over to me with my prescription (for pain relief and antibiotics as the chest infection my own GP had originally diagnosed was still hanging around) and discharge papers. I think she was glad to get rid of me before she had to do the drugs round and then dinner.
So we left. I felt like I had escaped from prison and was half expecting another doctor to chase after me saying I had to stay longer. We went home, had dinner and put Samuel to bed. We were all shattered and so Mum headed off home as she would have to be up at 4.30am the next day for work. I was very glad to be back.
Over the next few days and nights I caught up on my sleep and my food, although it is rather limited by the no-fat rules of my diet. On the Friday Wendi came round to keep me company and make sure I didn't tire myself out by trying to do too much. Then that afternoon we went to Matthew's parents for the weekend.
So life is more or less back to normal for the time being.
Now I just have to wait for a date for my operation...